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Cochrane training is hosting an International PPI Network: Learning Live webinar series on including patients and the public in international health research, exploring the challenges in understanding what patient and public engagement means across the globe, and differences in how embedded it is in research culture across countries and how it finds expression.
https://training.cochrane.org/international-ppi-network-learning-live-webinar-series
Across the globe we use different terms to describe how we include patients and the public in research. Some parts of the globe make reference to public engagement, some to patient and public involvement and others to community engagement and involvement. Moreover, there are variations across the globe about our understanding of what we mean by including patients and the public in research, how embedded it is in research culture and how it finds expression.
In this webinar, part of the International PPI Network: Learning Live webinar series, we explore how these challenges were addressed in the largest global research initiative aimed at tackling the challenge of neurodegenerative diseases. The EU Joint Programme – Neurodegenerative Disease Research (JPND) aims to increase coordinated investment between participating countries in research aimed at finding causes, developing cures, and identifying appropriate ways to care for those with neurodegenerative diseases.
There will be a Q&A with speakers for the last part of the webinar.
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